FXRFC is a national non-profit, tax-exempt organization administered by volunteers, all of whom are parents and health professionals. FXRFC directly funds promising research aimed at treatment. Applications for research grants and postdoctoral fellowships are accepted on an ongoing basis and reviewed annually.
Promoting awareness of Fragile X, we publish a quarterly newsletter and information materials. We also hold fundraising events and organize parent advocacy groups across Canada. FXRFC has established a Fragile X Clinic at Surrey Place Centre in Toronto. It is the first dedicated Fragile X Clinic in Canada and is a member of the North American Clinic Consortium.